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Old 09-02-2011, 04:06 PM
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Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
15 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
15 yr Member
Heart SO SAD for YOU

Ah...... dear Sinead-

I sit here hands no keys wondering, how can this be? Knowing as well, the credibility of video evidence truly helps doctors who so often try to sift through the implications of spoken reports. We took a video in for our son's psychiatrist to view at one point, and it spurred true and helpful action vis-a-vis his situation. It truly enlightened him, as I am sure Paul's video of your lack of rest did for your consultant.

So now you await the HSE to time the next step. Makes me so SO nervous about the Obama/Congressional mess we have here especially when her "lowness" Rep Pelosi the Speaker of the House at the time said something to the effect of just pass the legislation and READ it later. That kind of political lunacy has set me into a frame of fire everyone and start over with a tea party mentality [and I mean everyone].

I ache for you waiting at the mercy of state medicine for the timing of what must come next. I have had back fusion with screws and rods, and I thank God for this, because prior to the surgery I was screaming constantly from the pain, as you know, though the fusion did not bring an end to my saga. If you require some surgical help to address the mechanics of your spine, may it be done with such precision as to leave you fully prepared for the following step of a Nevro implant [the next step your consultant presented]. It took a good six months for me to heal from the fusion before diagnostics revealed the next steps in my situation. I write this not to frighten or alarm, but to steel your mind for the process however it unfolds in your situation. At the very least, removal of the Medtronic and the mechanical work on your spine should be able to be accomplished in one step so the healing may occur preparatory to the re-implant of some then far better SCS technology, whatever it is at the time.

In the meantime, meds should be prescribed for you to both manage your pain AND allow more restful sleep. The meds are sure to affect your mental acuity but be able to help you endure the meantime.

You and Paul are both very much in our prayers!
ZZZ abundant,
Mark56
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"Thanks for this!" says:
Rrae (09-02-2011), Sophie_ (09-02-2011)