Quote:
Originally Posted by nide44
Most neurologists are clueless as to the proper care & treatment of PN.
Idiopathic is too often labeled when the doc is bluffing, clueless, and wants you to gop away.
Listen to Glenn.
Go to Lizajane.org to see all the tests that should be done.
Get yourself a neuro who is a specialist in PN & does research.
Johns Hopkins, The Jack Miller Center, Cornell-Weill, & Mayo Clinic (my last choice), are good places to find a good neuro.
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I think you are right. I've been passed to four different neurologists in the same Neurology Clinic in a very prominent hospital in NC. None of them know what is going on. My general practitioner is first to admit he doesn't have a clue - that's how I got to a specialist. I will say that going into the hospital setting each time and seeing others there - I have felt guilty about complaining about my pain - at least I can still walk. But it hasn't gotten any better - just worsens over time. My biggest fear is that I will not be able to walk at some juncture.