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Old 09-04-2011, 02:57 PM
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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Hugs to all who have contributed to this thread as of late!

I take Clonazepam still, plus Cesamet, and while this seems to keep the pain and attacks down, I still occasionally find myself laying the head down on something cold for a couple minutes, or applying pressure to a spot to stop the pulsing pain sensation (oddly, that works for me for relief sometimes).

Someone asked about EMG... I think that's what the test was called? I had pads stuck to points all over my jaw/head, and had to do movements with my mouth. Computer collected data, then specialist jotted down trigeminal neuralgia on my tick sheet (which actually had 12-13 different conditions listed from specialist's findings - wasn't a nice time in Laura's life to see all that, I had just turned 30 and my life hadn't even really started!). Add to that an MS diagnosis came a few months later which put a LOT into perspective and answered a lot of unknowns.

I hope everyone's been doing well and has been having lower pain or more pain free days
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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