Hugs to all who have contributed to this thread as of late!
I take Clonazepam still, plus Cesamet, and while this seems to keep the pain and attacks down, I still occasionally find myself laying the head down on something cold for a couple minutes, or applying pressure to a spot to stop the pulsing pain sensation (oddly, that works for me for relief sometimes).
Someone asked about EMG... I think that's what the test was called? I had pads stuck to points all over my jaw/head, and had to do movements with my mouth. Computer collected data, then specialist jotted down trigeminal neuralgia on my tick sheet (which actually had 12-13 different conditions listed from specialist's findings - wasn't a nice time in Laura's life to see all that, I had just turned 30 and my life hadn't even really started!). Add to that an MS diagnosis came a few months later which put a LOT into perspective and answered a lot of unknowns.
I hope everyone's been doing well and has been having lower pain or more pain free days