Welcome, Carly!

It seems pretty typical of neuropathies to be misdiagnosed for years. I went to a neurologist after several years of increasing hand weakness, fasciculations, twitching, and tremor, and it was all explained away as other, benign things. Ha. Five years later I woke up with a thumb that suddenly wouldn't extend, getting everybody's attention, and it turns out I have multifocal motor neuropathy (MMN). Could be much worse; I had about decided that I had ALS.

Anyway, the neurologist you are seeing will probably do an EMG which will at least provide some information about the state of your nervous system. Don't be afraid to ask questions and don't be afraid to get a second opinion. We are immeasurably lucky to have the Internet now, which helps so much in finding out things for ourselves (always remember to be aware of the reliability of your sources, though!)

This forum is a great place for information and support. Don't be a stranger, and keep us posted about your progress.

--twitchyfirefly
*admin edit*