Quote:
Originally Posted by bobthebuilder54
Hopeful, Hello,
I am new here and reading your post sounds aful familiar. I am and have been going around the dx circle for a few years. When people ask me what I have I do not even know what to say to them or where to start. I also am hypothryoid and have been for six years, it has been controlled for that long also, but just had an ANA panel done that said that my hypothryoidism was due to an autioammune disease. My question to you is did they do a ANA panel on you to dx the schrojens (sorry spelled wrong)? Are they questioning any other autioammune dx such as lupus, scleroderma? Do you have weakness in your legs, thighs, arms? Are you allergic to the sun? Sorry for so many questions lol. Just interested. I am so sorry that you are going thru this dx night mare also. I also was told mine would not get better and that it would progressivly get worst hopefully slowly
Susie
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Hi Susie, I have had blood work for ANA, Lupus and Scleroderma. Everything comes back OK. My neurologist said his mother was dx'd with Sjogrens 10 years ago and just tested positive for ANA this year. Was your ANA positive? I do have weakness in my legs and arms. coming up stairs is hard. I hope they are wrong about it getting worse. Mostly, I have been told they just don't know if it will get worse (I can answer that for them, it has gotten a lot worse). I just hope for some relief. I am also sorry you have to go through this.
hopeful
