Quote:
Originally Posted by ipreferdosequis
thanks for the reply sadie, nice to see hear from others my age
my biggest fear in my case is I'm finding many physicians don't bother with MVD for atypical cases. My doc's just seem to have no clue what else to do except operate due to how much pain I'm in. I have only experienced the sudden electric stabbing shocks of typical trigeminal about 20 times throughout the last 3 years, which I am very grateful for. My horrible burning pain however has slowly spread throughout my face and started sticking around for weeks on end, then became a daily pain that slowly got worse throughout the day until by the end of the night I wanted to kill myself. And now for about the last 9 months that pain is unrelenting, constant, and consumes my life. I've also developed a pressure in my sinus cavities, under my eye and deep in my ear that is unbearable...I feel like I have a sinus infection every day, like a massive head cold along with a migraine. The majority of my pain is on my back gums, back of the tongue into the throat region, and deep into my ear...which drives me crazy. My hearing is off, my taste many times is off- side of my tongue feels like sandpaper constantly. Foods are a major cause of flaring up my pain- coffee almost makes me cry. For some very odd reason however I can find minor relief from my pain while eating...my docs don't understand that one...I dont know if its the process of chewing or what but my pain subsides for only moments while I eat...unless i'm eating jalapenos then it explodes with pain..hehe
anyway I'd love to hear opinions from anyone....do I truly sound like a candidate for MVD? many of my findings online say otherwise...with my surgery a month away that kinda freaks me out. I also don't like that my symptoms also fit the description for other facial pain..like anesthesia dolorosa...which I never heard of until this site...obviously I haven't had any surgeries yet that would have given me AD, but the description of pain is spot on besides the extreme facial numbness, I only have minor numbness. I've never had any facial trauma that I recall... could AD occur from a simple cavity being filled at the dentist?
sorry for goin on a little rant..this site is great...first few times I've communicated with others with facial pain...any feedback is welcome
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Honestly, from my research doctors dont do the surgery for Atypical TN. BUT if one is going to do it, go for it!!! If your in that much pain you need to do whats best for you. If you are already not in school/job now is the best time. I can relate 100% to that point where your ready for life to be over, but honestly surgery saved my life. yes i do have typical but also have atypical symptoms. The surgery made both of those less painful. It was the best decision i ever made.
I wish you the best and hope that the surgery shows something on the nerve so that they see whats going on and can fix it for you. Its so funny how you talk about coffee because I am the same way and i LOOOOVE coffee so its horrible first thing in the morning when i make my kcup and i cant drink it for an hour!
I was in my last semester of college during my worst pain and i still to this day dont know how i made it through. I think it was the thought that this is the end your almost done.. but i must add that i was going to the ER every week for pain shots because it would get unreal. I think you made a good decision by worrying about your health because thats what you need to do. No one deserves to live like this and college isnt going anywhere. To lighten the mood a bit, the economy sucks, jobs opportunities suck!
Please feel free to message me anytime with any questions, concerns, or just need to talk about this. It is tough because you are at this crazy stage of college in your life but YOU WILL MAKE IT THROUGH THIS!!!
keep in touch!