Cant tell you how good it is 2 know that i can talk to ppl who have been through or are going through the same as me! its such a relief 2 have ppl to talk to about it my own family and friends are brilliant but it feels sometimes like i'm speaking a foreign language when i start on about SCS and nerves and dural spaces!

I've done so much reseasrch i'm hopin to be fully prepared for the 28th of sept when i'm going up to chat 2 the specialist and hopefully i wont be fobbed off with platitudes! I cant believe the last time i was in with him i didnt even get a brochure or anything for the SCS my head was just so fuzzy trying 2 take it in!

How is everyone keeping? what stages are ppl at with their treatment? How have people found it?

hope you are all keeping well!!!

love

emily xxxx