Quote:
Originally Posted by ipreferdosequis
Try to describe the pain in detail..is it constant or episodic, and in exactly which areas of your face? MRIs don't show everything, including TN.... I felt stupid also when docs kept telling me there was evidence of nothing, I went through a very stressful period where I saw over 10 physicians...many of them looked at me like I was crazy, as if i enjoy pretending to be in pain. This made me very angry and confused... the healthcare system became my enemy. I saw a group of dentists, a few family docs, orthodontist, tmj expert, ear/nose/throat- who stuck a camera past by broken septum to look into my throat, also prob the worst doc ive ever met with, no compassion seemed to think i was making it up or exaggerating greatly- his final diagnosis was take acid reflux meds..thanks jerk. Finally I switched my dentist for about the 5th time and she actually was very concerned, sent me immediately to the same oral surgeon who removed my wisdom teeth when I was a kid, he did some quick tests, also found nothing and said "gotta be nerves" sent me to neuro where i was diagnosed atypical TN.
have you seen a neurologist? If not i recommend so.
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To me, they feel like strong electrical shocks. The worse thing is that they are random. I don't have any idea when it is going to happen nor do I have any control over it. To me, they seem more episodic than constantly going. The best way I can describe as what part of the face is the cheek/jaw area, sorry if I can't describe it right, I am kind of at a lost with this right now..