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Old 09-10-2011, 07:59 AM
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Burntmarshmallow Burntmarshmallow is offline
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Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
Burntmarshmallow Burntmarshmallow is offline
Grand Magnate
Burntmarshmallow's Avatar
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
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Wonder @lara and want to say that in 99 my lower jaw was broke on both sides and have plates on each side of jaw but also that my nerve on lower right was snapped so wonder in 2002 I had a PNS aka spine cord stim implanted for my pain and it saved my life.I was the first in USA to have one for face pain
wonder since then I have been posting and supporting folks with trigeminal neuralgia (T.N.) since that was what I was told I had. My neuro doc passed away from brian tumor so wonder that my new neuro and oral surgeon told me a few weeks ago its not T.N. it is R.S.D. that I have.
But for the most part cept for my right eye and headaches wonder that my pain is controlled very well with my stim. Wonder just confused on the whole is it T.N. or R.S.D. . wonder what dose it matter tho really nerve damage is nerve damage and t.n. or r.s.d. it is just a name right???
wonder if I can share the lnik with lara and anyone else of pic of me after the surgery it is in a thread I started in the t.n. room.... first post on top of the page... http://neurotalk.psychcentral.com/thread124048-21.html
wonder if anyone needs support or help as they are getting one I AM HERE !!!!!!
PEACE
BMW
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"Thanks for this!" says:
Abbie (09-10-2011), Addy (09-10-2011), Alffe (09-11-2011), barbo (09-10-2011), Lara (09-10-2011)