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Old 09-10-2011, 09:29 AM
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MelodyL MelodyL is offline
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Join Date: Aug 2006
Posts: 8,292
15 yr Member
MelodyL MelodyL is offline
Wise Elder
MelodyL's Avatar
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
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Quote:
Originally Posted by kwinkler View Post
GBS frequently occurs after an infection. I know I experienced sharp pains along with the weakness when I had it as a child. It can easily be tested for with a lumbar puncture. At least they would know if it was GBS or not.

I was in the hospital for almost a week before the docs decided to do a LP and came up with my diagnosis.
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Hi:

Yes, I know about the lumbar puncture. I just got an update. Her knees are still swollen, her hip hurts, but she is able to stand for short times, and take little steps.

The family knows about the link to GBS now. Whether they inform the doctors that are consulting, well I have no idea.

Somebody better do SOMETHING. This kid is only 9 years old.

Thanks VERY much

Melody
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