I know what you mean, Karen. I had the same problem. No one wanted to pay me the time of day - either because they didn't know about CRPS or perhaps your surgeon may be put on the defensive a bit because if we complain something is still wrong, then that some how reflects on him as a 'failed' surgery. As was the case with me. It's very frustrating and sometimes we have to weed thru several Dr's. Eventually, someone will come along and see this for what it is.

Has anyone mentioned anything about the SCS (spinal cord stimulator) ?
Just wondering. Alot of Dr's do these. I have one in my lumbar for the burning neuropathy pain in both legs. It sounds freaky I know. When all other treatments fail, this is sometimes considered, depending on whether or not Dr thinks you are a candidate

I hope you can start getting answers soon.
Let us know how the SNB injections go

Rae