I used to believe that CRPS/RSD was rare but I don't any more. We know four people who have been diagnosed, not close friends but colleagues.

Both my pain management doctor and Neurologist treat many CRPS patients. My primary care physician, whose practice is in a rural area, also treats CRPS patients and several years ago his physician's assistant was disabled due to CRPS.

I used to be troubled by strangers asking me about my service dog. I got some good advice from an NT/CRPS service dog veteran who explained why she was very open with questions from strangers and her explanation made sense to me. Now, if asked, I begin by explaining that my dog helps me by picking up things steadying me, assisting me with dressing, etc. due to a neurological disorder. I am now open and if anyone asks I tell them I have CRPS. I am amazed how many people indicate that they have a friend or relative with CRPS.

I think there are many of us out there!

I am in the same prayer department with you Jim!!!!!!!!!!!