Quote:
Originally Posted by erinhermes
Hey sweetheart! Thanks for welcoming me back! 
How have you been? Have you been getting stronger? I have been really worried about you! 
If you get some time, please let me know how you have been!
Love,
Erin |
Yooo! Im at a standstill currently...still on 40mg of pred a day, ivig 3x a month, 275mg of imuran a day. I have applied for the stem cell trial at Northwestern Memorial Hospital in chicago and have been getting very good reviews from them. They asked me to come out next week for a consultation and im hoping that they accept me. If not I will be going off the imuran and switching to tacrolimus which is a new used immunosuppresant i guess? I have never heard of it, but my neuro said either give her 6 more months of imuran or switch. I dont like the imuran because im still weak and still doing IVIG. Not worth it..but im hoping for the transplant!
Glad your starting to feel better!
Tyson