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Old 09-14-2011, 02:53 AM
SD38 SD38 is offline
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Join Date: Sep 2011
Location: London (Greenwich) , UK
Posts: 313
10 yr Member
SD38 SD38 is offline
Member
 
Join Date: Sep 2011
Location: London (Greenwich) , UK
Posts: 313
10 yr Member
Default ON and TOS. Have also experienced Scintillating Scotoma ????

Quote:
Originally Posted by Fallingapart321 View Post
One year ago I had surgery for a bone spur that was beginning to pierce my spinal cord at c5/c6 level...they removed the spur and gave me a fusion....two weeks prior to surgery I developed a constant occipital headache...off the charts in pain....vomiting....couldn't sleep....kept ice on my head constantly...after surgery the headache never let up for 14 weeks...I cried constantly....I lived on Vicodin to keep ot at a level 8 instead of a 10....it also causes recurrent blindness in my left eye...what finally stopped it was a steroid wash into the area by a pain specialist...2days afterward...it was gone....it comes back sometimes once or twice a week...but I take a norco and it wipes mot out....since the headaches have calmed down....I have the pulsating sound in my ears...mine reminds me of the sound of cicadas...sort of a high pitch electronic pulsing...it does follow my heartbeat.
Hi I've just had a first rib excision op 2 weeks ago for Vascular TOS. Unfortunately issue is not over with as my left side needs the same procedure. I have some C3 & C4 facet joint sclerosis but apparently my symptoms did not originate from my C-spine. Just to let you know that prior to being given this diagnoses I too experienced occipital headaches and dizziness,pulsing sounds in my ears, along with heavy/fatigued arms, Raynauds etc etc . My GPs initially dismissed as me possibly suffering from ANXIETY because they couldn't pick up on anything that they did!!!!! It was only when I continued to go to my GP with my symptoms that he referred me for PT at my local hospital (5 years of symptoms before doing so)!!!!!! ...... Thank goodness that it was the therapist treating me there who picked up on a possible vascular problem. She got me to do the ROO'S and ADSON'S tests. Both hands turned white and loss or radial pulse in various positions. I was then referred to a vascular surgeon who did various tests including an angiography.... discovering occlusive disease. What I'm trying to say is that nobody knows your body better than YOU! If you still don't feel right, see if any other tests can be done to rule out other contributing factors like TOS?????????? Hope this is useful? Out of curiosity... Have you ever experienced Scintillating Scotoma ( like a crazy "trippy" wavy light show in your vision ), I had it 3 times plus a muscle spasm which still occurs in the opposite eye? I have no idea if this is related in anyway? Best of luck to you all out there. S
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