Quote:
Originally Posted by AJSG
I sure hope you're right, Allen. So far she's not noticing much reduction in pain. They did decide not to reduce her oxy any further for a couple of days, and increased the diluadid in the pump. Tonight the doctors were not very happy with her response, and we were afraid they were going to drop her case. One doctor said she should smile more, and talked about how mental attitude is a big part of pain. I'm not sure what they meant. She's trying hard, but she hurts a lot. Her dad did say today that it was good to have her more alert. When she's not in terrible pain, he said he's beginning to see glimpses of her old personality, in between the crying in pain and the grouchiness. And that's so good to see!
They are giving her IV dilaudid to help every so often, and it does seem to. They want to get her totally off oxycontin. Do you think that another week is long enough to do that? She's supposed to have the permanent pump in 3/26.
Tayla4me, how long did you feel rotten when you got your pump? I know AJ would like to know. She just can't see any light at the end of the tunnel yet. I guess it's only been 5 days, but they sure have seemed like long ones.
AJ's mom
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I think I had a strange type of headache for about 3 weeks but it got a little better every day.
I started to become clear in the head after about 10 days and felt as though I was back in the land of the living.
I did have some quite bad nausea as my body got used to the intrathecal morphine, this was also the cause of the headaches, anything which can alter the flow of the spinal fluid can give these symptoms.
She is only early days yet so please reassure her that day by day from now she will feel just a little better.
