Hello there my friends;

My Consultant is hoping to bring me in next Week probably Wednesday to start some of this revision surgery I need, I've been to see him for the last 3 weeks in a row, the second visit was to clairfy and/or agree to his initial idea of completely removing my Medtronic SCS, get an MRI to check what else has gone wrong, stabilising surgery, and put in a new Nevro system.

2nd time was lets explore a different approach as I wasn't too keen on all this surgery but if it had to be done then i'd do it but..... So then it was suggested to leave the leads in, perhaps put in a 2nd lead on the other side and change to Nevro. He also had to change my meds as the ones he'd given me the week before didn't suit me at all. So got my meds changed to the ones we all love the oxy....
He thought it was a good idea to use the existing leads.

3rd visit to get me registered in the public system so I can get the Nevro put in, next year and put in the 2nd lead. I also saw the Pain Management team and they were really nice, they listened to what I had to say and they were clearly there to help me and didn't seem like they wanted me to fit into their system if you know what I mean.

Anyhow, I've been in so much pain that life has been really, really hard (so what's new eh). My day at work is such a struggle, i can barely walk, I can barely drive, I can barely keep myself up right and I haven't worked a full week in ages but I have been bringing work home with me so it still gets done.
With this in mind he doesn't want me to be like this for too long, my original appointment is for 28th October, he'd do it tomorrow if he could get theatre time and more hours in the day.
Hopefully i'll be going in next Wednesday, to move the exisiting leads (and probably change them) and see how I go, he also wants to keep me for two days to get my pain under control. To be perfectly honest he might forget about this bit. As much as I love my doctor he forgets and he has to be reminded.

So that's my update for the mo

Oh yeah, some idiot tried to run me off the road the other day. She was turning at a junction, I was on the main road and she just kept coming, she didn't see me. I remember being perfectly calm thinking do I go in front of her (but she's still coming forward) or do I go behind and hope that no more cars are coming down to that junction the same direction she was coming from. So I chose to go behind her, car went off the road and missed a dyke in a ditch my centimeters, this dyke had a 2m drop and all i could see was me ending up in this dyke.
Anyhow that didn't happen but boy did I get some fright! And she didn't even stop she just kept going, she eventually stopped when she realised that I wasn't moving, she got out of the car and said 'sorry' I could have killed both of us! Oh so scary, the back went into a complete spasm for the rest of the day and I could do nothing. All's well thank God, no one was hurt, no damage to cars thank God but really some people should not be driving.

My moan for the day, sorry it's so long.

Chat soon and love to all

Sinéad xxxx