TinaLou, I read your blog concerning steroid use making your EM worse. I've been on an inhaled steroid for years that is reported to occasionally cause Churg Strauss. It gave me killer PN/EM symptoms and am trying to wean off it but so far have not been able to stop the med entirely and still breathe. I seem to have developed steroid myopathy from it, haven't gotten definitive word from Dr yet but i think he suspected last visit. I have a lot of EM symptoms, stopped steroid for a couple of days and when I resumed I could feel the heat going back into my feet.

I haven't had any blood work for a couple of years, last time I did not have elevated eosinophiles but don't know what is going on at this point. I'd like to hear what symptoms you have with the Churg Strauss, I didn't think I had it but something new has been going on for the past few weeks and have been wondering a little. I occasionally get a severe pain starting behind my knee that radiates down and up my leg, it feels more vascular than neuropathic but I don't really know. Also have had some severe stomach pain, am being treated for ulcers but no one knows if I really have them, it was just a first step. Pain comes back as soon as I stop med. Have some crazy reactive airways too. I know its rare and I hope I don't have it, just asking as you have experience.
Thanks, Judi