Quote:
Originally Posted by Sharyn
My partner is 26 years old,
in the past year he has started having severe headaches, pressure in his head and behind his eyes, pain behind his eyes, collapsing when he laughs, constantly tired, sleep paralyisis, blurred and double vision, loss of co-ordination, loss of balance, constant dizzyness, loss of muscle strength, agressiveness and loss of perception to name a few
He had an MRI which shows he has enlarged ventricles and a narrowing of the passage between the third and fourth. He had ICP monitoring, but his intracranial pressure is normal.
The surgeon intern we spoke to said surgery would not help him, as some people have enlarged ventricles its just the way they are - but my partner has only had these symptoms come on in the past year and they are getting worse everyday.
When looking at cases online, the normal protocol for enlarged ventricles is to try and resolve the blockage and narrowing, but he has been told there is nothing surgically he can do??
I dont know if anyone has any experience with neurosurgery who can help me, but any views would be greatly appreciated
We are in the UK so we get our treatment free on the NHS, which means we dont have much choice in regards to second opinions unless we go private- but with him not working now this seems like an unlikely option
Thanks in advance  |
My son has an enlarged ventricle in his head, it was discovered when he was 9 years old ( he's 22 now ) when he had a large fit and a stroke. Recently he's been sufferering sever headaches, nose bleeds , dizziness. He went to see his GP who did various tests on him, he has refered him back to the neurologist and wants an MRI scan done asap. One side of my sons face has hardly any feeling in it and also on the same side, substatancial hearing loss and weakness. The weakness has been there since he was 9 but is considerably worse now. His GP said if it has grown they may have to try and remove it, very worrying as some of the symptoms are very new.