Quote:
Originally Posted by LaurenAly205
Hey I'm 21 and in the same boat as you. Ive had small fiber neuropathy for over a year now but it was on diagnosed in January 2011 by one of the top neuropathy specialists in the country at Massachusetts General Hospital. This whole radiating pain thing is UNBEARABLE i dont know how you have dealt with it for that many years. Doctors have put me on Gabapentin, Lyrica, muscle spasm meds, flexirel, and now finally Methadone (which i stopped taking) how do you deal the the burning pain? I have it in my arms (finger tips to elbows) and my legs (feet to my knees) does anything help you?????
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It sounds like you have it worse than me. I suppose I should be thankful!
I try not to be on my feet more than I have to during the day. If it gets bad, sometimes soaking my feet in hot or cold water helps. If it's bad when I go to bed, keeping my feet above the covers so they're well ventilated seems to help. Throughout the day, keeping them at a normal temperature (not too hot or too cold) sometimes seems to prevent it from getting bad. Also, I don't drink alcohol (my condition started soon after I reached legal age – ironic, right?). On average, it's tolerable for me, but it sucks having to suffer through it, and it's frustrating to feel so limited. I don't know if I've been any help, but I hope you find something that works for you.
How did you find the neuropathy specialist?