Have seen the testing thread and googled every possible article on TOS. In some ways I know more about it than a lot of the doctors I visit. :-( they did the blood panel first when all of this first started.

Haven't lost any strength or precision in fine movements yet. Hoping that is not in the cards. Worried about permanent nerve damage but unsure what to really pursue next. So exhausted. I have seen numerous doctors. 3 neurologists. PT for 20 sessions. Ortho. Chiro. Just beyond scared and frustrated.

I'm only 33 and am realizing that my life is likely forever altered or diminished because of this. Newly married and I am having a difficult time wrapping my brain around the fact I am headed for a lifetime of pain or multiple surgeries for recurrent symptoms. Not sure how I will work or maintain any sort of independence.