I bet that all was one REAL CHALLENGE! But you made it....

Cathie I'm confused about your bloodwork tho...I've always had mine taken right BEFORE the infusions, so you'd get the closest to 'normal' numbers after the IVIG's worn off. When I'd first started tho, tests were taken every 10 days for the first couple of months to..I think.

My numbers these days are skewed every which way tho due to all the different meds doing different things...and each skews the numbers in different ways. One's calcium depleting, another changes the white and red cell counts, and a third is doing a number on the cholesterol- I'm hoping that dropping one of my meds, will be the result of a new round of tests and who knows what else.

I'll try and sound out some folks I know about area Endo's but for now, I've an appointment in 3 weeks, enuf time to get blood work done and get results to the docs. Times like this the only other time I get to see folks is at different docs...so far, but not Endos-yet.

<<<<< that's how I feel, You?

Super good thoughts in the meantime, I'll keep you updated. - j

PS I just had a PET scan and it was 'radioactive glucose'...is that the same? No side effects really for me tho.