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Old 09-20-2011, 06:16 AM
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
15 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
15 yr Member
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Karen, as early as possible is always better, but being diagnosed at 6 months is certainly Not Bad, all things considered! I believe my doc said the hard wiring changes in the spinal cord happen sometime between 12-24 months of RSD onset? You should be optimistic!

I've been able to keep other areas of my body (my dominant upper extremity is my main RSD site) from turning into full blown RSD areas, after injuries, by employeeing various strategies to "calm" them down.

The fact that you have family that is experienced with the syndrome is sad, but also helpful that they can pass along their experiences.

Piggybacking no side-effect coping strategies with your blocks is the best chance you have of long term success. Warm Water PT! Sauna (Infrared reduces some of my swelling)! Gentle massage with a highly trained massage therapist! Warm baths with Epson Salts! Taking meds before your pain escalates too much (if you're using pain meds.) Try HBOT via insurance or out of pocket if you can afford it. Moist heating pads. Gentle exercise. Use pillows for cushioning in the car if vibration hurts. Meditate or pray. Avoid TV during this period of healing. Avoid foods that will exacerbate your RSD. Avoid stress. Get help to take over some of your household chores during this time. And so on, the RSD sticky "lifesavers" will give you lots of other ideas!

I told you about Lidoderm patches already, but let me give a slightly longer explanation, it's best to use them in flare situations. If you try to use them daily, they don't work as well--at least that's my experience. Your doc might even have samples for you to try, and if insurance won't pay for them (and if you can't afford them) the cream is a good option. The cream is stronger, but won't last as many hours. Also, make sure and wash your hands well after application--you don't want this stuff in your eyes!

My one great regret is that I wasn't "selfish" earlier on. Your health has to be your first priority right now. Consider that you have a new job, taking care of your body, to the best of your ability, 24 hours a day.

Thanks so much for the positive feedback!
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