Hi all

I'm a 60+ grandmother living in Queensland, Australia

Have looked at this site previously as I thought I might hav MS, but didn't join at that time.

Saw a neurologist on March 2. Sent me for an MRI which showed no demyelination so I was told to come back in six months time.

As I was still feeling really ill I asked my referring doctor for a referral to another neurologist. Saw her (Neuro) on Thursday still convinved that I have MS. She also told me that there were no signs of MS on the MRI.

I was feeling rather upset because I felt there is definitely something wrong with me. It wasn't until she started examining my eyes and noticed that I have a droopy right eyelid that her manner changed and she asked me to have a blood test and to call her in 2 weeks time as it would take that long for the results to come back from Sydney. The neuro is in Brisbane.




The tests she asked for said ACHr Ab and CK. As I didn't know what the first one stood for; but I knew that CK was for creatine kinase, so I did a search for creatine kinase and found that the other test is for Acetylcholine receptor antibodies.

Acetylcholine receptor antibodies are found in myasthenia gravis and apart from the fact that I also have muscle pain, my other sypmtoms also fit.
Have since found out that a medication I was taking for the Chronic Fatigue I thought I had is contra-indicated in MG and causes the muscle pain.

There are other medications that I have had problems with in the past and I discovered that they are no-nos in MG.

I would have had aneven droopier left eylid except for the fact that I had it reduced some years ago but no-one ever thought to ask why it had drooped and it is actually starting to droop slightly again now.


That's all from me for now

Regards
cinusti