Hi Tyson,
I am also waiting on the new protocol for the FDA to be approved. I had to come up with 25k for the stem cell harvesting because medicare wouldn't cover that part. If you need help raising any money for the transplant you should contact the national transplant association, they assist you in fundraising. There is no financial help out of Northwestern, I have looked into everything. I do have a name of a codominium place out there that works with dr.burts patients and they give a pretty good discount on housing, that's where me and my mom will be staying when I go. Good luck with the insurance. If there is any deductible with your insurance, Northwestern will require that you pay it up front before they schedule you. I have been working at this for almost a year, I was accepted last December and hope to be going around the first of the year.
Kristy