Member
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Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
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Member
Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
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en bloc's reply above is absolutely correct.
I also have Sjogren's, and it was actually the neuropathy caused by Sjogren's that was diagnosed first - burning small fiber, non-length dependent. Although greatly improved and being here for almost two years now, the neuropathy is unlikely to go away completely, and for sure the Sjogren's never will. The neuropathy improved w/o Rx meds but with the use of certain supplements (NOT herbals!).
I've some cranial neuropathy as well as autonomic nervous system problems; however, nothing to the point of incapacitation. The first eleven months were the worst. This second year has been a lot better (keeping fingers crossed).
Best,
Sheltiemom
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