Quote:
Originally Posted by malawigirl08
Hi Buttercup
I am also in the UK and it has taken me three years since diagnosis to feel as though I am actually getting someone listening to me - I hope your experience is better but my experience is that as long as referrals meet the 12week target of being seen you then are left to get on with it. I would recommend you try your best to get Mark admitted to hospital, even if it is 45miles away.Good luck.
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Hi Malawigirl, It's over 12 wks since Mark was referred to the neurologist. I did speak to their department which is in Liverpool to ask how long he would have to wait for an appointment and the girl the other end shouted "how long is the waiting time in Wales!" She told me 3 mths, but when his letter first came they wanted him to wait until the end of Nov', I told them he couldn't wait this long and we would travel to Liverpool for an earlier appointment. They then found an appointment in our local hospital for 30th Sept', which has now been changed to 14th Oct'. Poor Mark almost cried when he read the letter!
I could see on Thursday that our Dr was not happy with the way Mark is suffering, but other than him faxing off a letter to the neurologist there is little more he can do.
I can't understand why they have not referred him to the pain clinic? The would seem a normal process to me!
Thanks for the input
Buttercup x