I know what you mean, I was telling my docs and some family that we wouldn't know what was wrong with me until I was dead. I was going to have to live with never knowing what was wrong and when I died the only way to figure this out would be to do an autopsy. I know that's morbid but that's the way it felt!

It is so frustrating and tiring to wait for answers. I am also an odd combination of diseases that puzzled doctors for a long time. My primary physician used to say I was a puzzle, wrapped in a mystery, surrounded by a conundrum. He was such a great doctor, he's retired now, mostly

I finally got answers just to have my other specialists question them.

Just hang in there, you will get your answers.

Kristie