I am one of those that they have been having trouble diagnosing. I am going to Vanderbilt in October for another work up. I am responding well to pyridostigmine, and there is not much question (at least in my mind) that I have myasthenia, especially since my father and his sister had it, but I do question whether it is autoimmune or CMS. That makes a lot of difference for treatment and the rest of the family. So once again high expectations!

I am so sorry you (and we) have to work around the incompetence of doctors when it comes to this disease. The amount of misinformation and diagnostic resistance is shameful. The local neurologist told me he wasn't a neuromuscular specialist (no need for the disclaimer).

You certainly may have understood what the doctor was conveying. I have left neurologists offices with some strange diagnoses, because I don't think they have coding for "crock."
nc