Quote:
Originally Posted by keep smilin
Dear Kitty and Ballerina,
I'm like you in that I want to know exactly what is happening with me even tho it paints an ugly face on my RSD.... I have had this monkey for 5 years now.. It's work but I try to replace my pain and heart ache by happy stuff.. Like a smile or kind word or helping someone just by making them feel good...
I have Dr. S as one of my Dr. He has asked me to have the 5 day Ketamine infusion but it is nearly impossible due the non approval of my insurance, (3different appeals...) As far as current meds, no pain meds!! Sensitive tummy but I do take 3 meds to help with my burning tummy, (Reglan, prescription prolsac, and an spasm med.).. And ambient to sleep, The cool air breathing, I just live with it as I do my RSD pain... Not easy as you know...it can make me somewhat an impatient person but I try to smile anyway..
My unqualified thoughts concerning the ice water running thru your veins, I have to believe RSD will and can do anything...go anywhere it pleases, so it is possible that is RSD also...
I sure hope I have helped you in a good way...I can tell you with all of my heart that you have my support and concern as I truly understand what a bear... A 4 headed monster RSD can be...!!
be well...and have a wonderful night...
Hugs, Kathy
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How ironic Kathy. You desperately want the Ketamine treatment but the insurance has denied it. I have both a primary and secondary insurance that will pay 100% for any Ketamine procedures but I am severely allergic to Ketamine. Guess you re right- no matter what the symptoms we all have to keep smiling!