Hi Mike,
I hate to say "welcome to the club" but it's incredible how many of us have similar issues and no one has a definitive diagnosis or treatment protocol to fix this injury. Everyone is different.

I suffered a tbi from a fall (while walking my dog) 2yrs 9 mo ago. In that time I've seen 30 doctors. Having a constant headache every day since my fall, along with vision and hearing issues, & facial numbness explains my desperation to find answers...hence the huge number of doctors. No, I'm really not crazy and am not/nor have ever been a hypochondriac. ;-))

8 were vision specialists...from ophthalmologists to retinal specialists, to top neuro ophthalmologists to optometrists. I've tried vision therapy (which was unsuccessful). I've been to 2 different brain injury rehabs getting cognitive/speach rehab & PT

I've seen 3 ENT's, neurotologists, 3 physiatrists, a neuro psychologist, psychologist, functional neurologist, chiropractor, acupuncture the list is endless... I've been to Johns Hopkins, University of Penn, Detroit for vision (that was a postive trip - i'll explain below) and Mass Eye & Ear is my next upcoming stop for a 2nd opinion...with fingers xx'd.

I've recently been reading up on HBOT (Hyperbaric Oxygen treatment) that is being used on our returning vets that have tbi. It looks interesting & promising.

I've had just about every conceivable test (also did the testing for SCD which was negative)- with no success. & entirely too many medications which are the worst...so be careful with them!

I've had doctors that have been rude, flunked bedside 101, and have been arrogant & dismissive and or clueless.. and those, I dismiss immediately. You will find doctors that will be helpful... they will be life savers for you through this wild ride of tbi. Take care of your own medical direction. you will be your best advocate and if you're unable to do it yourself... hopefully your partner or close friend or family member can be that person for you.

A few suggestions.
1. DO NOT GIVE UP! Find a good primary care Doc that can coordinate other specialists and the meds they'll want to prescribe. Run that info through your primary BEFORE taking anything.

2.I've recently seen a functional neurologist (might be listed as a chiropractic neurologist). He has been extremely supportive and helpful(unlike the 2 neurologist MD's that I saw) The exercises are helping but as he said... I need to take baby steps to build up to typical vestibular exercises. This is helping

3. There is an eye Dr. (Dr. Feinberg)in Detroit suburbs that does prisms & understands the issues related to vision problems and tbi. Check out her website. vsofb.com I've seen her several times now & she is extremely understanding & helpful.

4. Contact the brain injury program in your state or biaa.org (I think). There are a lot of resources to help people like us and they may provide funding for you thorugh their program as well for rehab services.

5. Rest alot! I am currently seeing a psychologist who also "gets it" and she's stressed the importance of taking care of myself right now. Resting helps. I'm learning to "Pace" myself. Do something, rest, do a little more, rest again...etc. She's helpful to use to "vent" so that I don't bring my frustration home to my husband. (even though he's a good guy and also understands & is extremely supportive)

6. Surround yourself with friends/family that understand. ALWAYS TAKE SOMEONE WITH YOU TO ANY AND ALL DR. APPTS. IT'S REALLY BENEFICIAL TO HAVE ANOTHER SET OF EYES & EARS TO RECAP THE APPOINTMENT AND INSTRUCTIONS.

...and most of all...
7. Find Humor. Laughter helps...ALOT!

Good luck to you. I wish you a speedy recovery!
Marsha