Know just how you feel!

I've been diagnosed as having ME/CFS and it's just as you describe.

BUT ... how much of how I feel is from the subarachnoid haemorrhage I had and the hydrocephalus I got after?

Not a clue. All I know is that there are times that I could just cry with weariness and confusion and frustration. I make plans, I try and create routines (yuk! but we have to compromise our preferences to handle these things) and then nothng happens because I can't cope with it. Or I can't concentrate. Or I forget.

The thing is, I've got to cope, because there's no one to look after me and my cats -- and I sure as anything ain't going to live on the poverty line on benfits, thank you!

Easier said than done, huh?

Not much help really, am I? Tell you one thing though, getting diagnosed with ME/CFS here in the UK is difficult and a lottery. And once you're diagnosed, there's very little support. My GP's fab, thank goodness. But there's only so much she can do.

If you want to talk to a fellow sufferer who's a near neighbour (Manchester), get in touch. As they used to say, it's good to talk!