I think Dr. Hibner is the only one I know of who does this for peripheral nerve surgeries. When you have pudendal surgeries with him the OnQ pain pump stays in for almost 3 weeks. He rarely gets infections now. When he first started doing this for post-op pain control he had some problems with infections but now that he has all the details figured out it is rare that anyone gets an infection. The biggest problem with them is they sometimes leak but the pain is so well controlled who cares if it leaks around the insertion site.
The Ketamine was given through an IV line in the arm.
I just feel so bad for you that you have to fight for any type of pain control. It is sad that even those in the medical profession don't understand.
I ended up hospitalized with Serotonin Syndrome one time and when my husband took me to the ER in the wee hours of the morning the ER nurse was so rude to me because I couldn't walk. She thought I was having an anxiety attack until she hooked me up to the monitors and realized I was in serious trouble, bad enough they thought initially it was a thryoid storm. After she saw my heart and BP problems she was nice to me. Then the residents came in and I wondered how most of them got through medical school. Very bad experience. Good thing I knew what was wrong with me and told the ER dr.'s what it was. Unfortunatley, I think we could all write horror stories about our medical care!
Keep fighting for your treatments. Prayers and a hug are sent your way.
Quote:
Originally Posted by kittycapucine1974
Hi, nyt2:
I have never heard of OnQ pain pumps being put on a nerve. I wonder if such an OnQ pain pump is similar to a femoral nerve block being put on a nerve (I am not sure which one).
They left your OnQ pain pump on the obturator nerve for ten days and you did not get any infection from your pump being left on for this long. You are really lucky! Even though I still felt severe pain from my surgery and from my RSD, my orthopedic surgeon had the nurse remove my femoral nerve block after about two days, despite my protestations, supposedly to prevent any infections. Result: the pain came back with a vengeance. I would spend my days and nights on my hospital bed crying. The orthopedic surgeon and the nurses did not believe I was in that much pain. They just thought I was being hysterical. They even called the shrink to my bedside, which aggravated things considerably because this idiotic shrink spent his time telling me that my pain was in my mind and that I was a druggie. I sort of kicked him out, telling him I came to the hospital for knee surgery and pain, not for craziness and hystery. I also told him I hate idiotic shrinks who spend their time telling me that my pain was in my mind and that I was a druggie.
I never was able to get an epidural nerve block. I was told these blocks are reserved for future mothers who are going to give birth.
It is really unfortunate nerve blocks cannot offer permanent pain relief. That would be too beautiful to be true.
Quote: "I then had my 2nd nerve decompression surgery 6 months ago (pudendal nerve) and they gave me a Ketamine infusion during the surgery." Was your ketamine infusion given through an IV line in one of your arms? Where I live, ketamiine is only used in veterinary medicine. What about us, humans?! Do we not deserve the same pain relief?!
My orthopedic surgeon is kind and understanding, but I know for sure that the nurse taking care of me (I unfortunately cannot choose the nurses who take care of me) always try to brainwash him because she does not like my taking the MSIR (morphine sulfate immediate release) capsules my primary care doctor prescribes for my RSD pain flare-ups in ordinary times. The only pills this nurse consents to give me even though I am screaming, crying, and writhing in pain are... guess what? TYLENOL pills! TYLENOL pills for post-operative and RSD pain! I cannot believe my eyes and ears! This is after the femoral nerve blocks are removed. These blocks are not that effective; I think it is because the orthopedic surgeon or anesthesiologist did not put enough medication into the syringe whose piston is pushed by a sort of machine so that the pain medication (Ropivacaïne) enters through the femoral nerve block. My complaining, begging, screaming in pain, crying in pain, and writhing in pain does not get me anywhere.
Quote: "Talk with the surgeon about your concerns and maybe they will work with you pain specialist to come up with something to try." Unfortunately, the only pain specialist in French Polynesia, where I am right now because I cannot afford surgery in the U.S., is not good; he treats me as if I did not have RSD and as if my pain was in my mind. Once, he even told me to cut my fentanyl patches (the kinds without a reservoir) in two, which would have killed me if I had obeyed him. Would you trust a quack like that? The only doctor who takes care of my pain is my primary care physician.
Thanks for your kindness and information. I will try to find someone willing to help me with my pain (post-operative and RSD) in the hospital.
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