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Originally Posted by FrancineAK
saw neurologist for first time this week. told her i've have pain in toes, fingers, etc., usual stuff, but also in my abdominal wall. when i have this pain i can't stand up straight. she looked at me like i was speaking french. anyone else had this pain? i got sjogrens diagnosis in 1996, trigeminal neuralgia in 2007. now looks like peripheral neuropathy. anyone know about autoimmune sensory neurontisis (ganglioneuritis)?
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Francine, I have had some pain in my stomach also. It will last for a couple days, but I also have burning also. I have it in my back also with the feet. My hands and arms are not as bad. I am not sure caused mine,but I had an infection in my back and could of gotten it from it. I have researched ganglioneutritis and saw it is connected to Sjogrens. How is your pain level and what meds are you taking if any? I am taking Gabapentin. It helps, but when it flares it is not good. I have all read that small fiber neuropathy cam spread also through the whole body. I am not sure what I have. Take care!