Quote:
Originally Posted by shazivyk
Hi, I realise that some of the posts are quite old, but all are relevant to my situation
Following a sternotomy to remove a tumour in my chest cavity in Feb 09, I suffered Phrenic nerve damage and a paralysed raised left diaphragm.
I suffer from breathing difficulties, have the feeling of a brick in chest, have the sensation of something blocking my throat, cant lie flat, constant pain and still taking pain relief etc all things that have been discussed by you guys.
One year on and Im told my diaphragm is 98% back in its position. But I am still suffering from all the same post op symptoms, my consultant and his team can offer me no explanation and say they dont know why I am continuing to have problems. Needless to say I was upset by their attitude and then I found your comments, Thankyou, Im not mad other people have or are experiencing similar things. I feel better for knowing I am not alone.
I dont know where to turn next as the medical team say there is no more they can do, except control the pain.
Any one had there situation resolved.
Thanks
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Hi just wondering how you are getting along, I have same issues cant breath go ballistic when they ask me to lay on my back as i can not breath. Been to 3 hospitals in same city, 3 different pulmanologists all went to same school same class all covering each others @$$. They said my sniff test was fine and lung would get better over 2 years later i did sniff test then repeat test blowing thru a straw which revealed paralysis.
3 Drs mad cause they did not authorize. reguardless they have no remedy and just told me to deal with it most people get along fine with just one lung/diaphram, i also take pain meds but they dont want me to use them cause they can suppress resperation??? cant even get them to do a phrenic emp test to see where problem is? Answer NO Nothing ever resolved sometimes i get severe nerve pain in my neck and my breathing seems normal not short of breath can walk/stairs etc most times difficult to walk to bathroom stay in bed 23 +hrs/day Pray!!! thats our only Hope