Jen
I'm going to suggest that you appeal the SSI adult decision, if you haven't already put this in writing do so now. THere are lots of steps to this.
I would also look into the psychiatrist in the other states that might be close enough, that take your insurance. In some area's this will work.
But most of all I would work on finding some one now, don't wait.
Also just keep doing what you are. You are doing a great job.
Donna