Hi Laurie,
My name is Laura
and I', leaving in Italy I also have MS and I'm trying to fight tooo bad when you are 27!!!!
Anyways I'm in this forum cuz U really want to stay in tuch with rhe other side of the country also to have news on the new tratements.
I was under tysabri for about 2 years and a little more!
Now doctors found that I'm positive at JC virus so they want me to stop it and I feel sooooo bad inside because on one hand I gelt sssso goood with Tysabri but on wandsday i'LL HAVE mY LAST infusion and I really don't know what to do then.
Doctors say that it is my decision but the things are Continue with a PML risk, stop it and doing avonex even if I don't like it and I think it makes me feel wroste or try to start with the new Gilenya.
So is there anyone who allready started and who can give us information about it!?
Thanks a lot
Laura
Quote:
Originally Posted by laurasari
I am nervous about starting this drug because its so new.
I have been trying to read peoples experiences but have not found much. Can anyone here share their experiences. The proccess of starting and any side effects if any you mighy have experienced. The Gilenya nurses wont talk to you until u r enrolled and i cant do that till may. I have to b off the tysabri for 3 months. I guess its to soon to know if you all feel it is working for you. .
Thanks
laurie f
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