Thread: What to expect
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Old 10-07-2011, 02:20 PM
Brennan068 Brennan068 is offline
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Join Date: Oct 2008
Posts: 313
15 yr Member
Brennan068 Brennan068 is offline
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Join Date: Oct 2008
Posts: 313
15 yr Member
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Quote:
Originally Posted by Gabs1307 View Post
I've just been diagnosed with Myasthenia Gravis after 3 years of going back and forth to different doctors...

i am 23 years old, and seems like i'll be fighting this alone!
I've done my research, and i've read everything on MG i've been able to find, but it seems like my family and friends don't understand it.

i am scared, prednisone is HORRIBLE... and it just seems like i have no one to talk to.

HELP?

can anyone tell me what can i expect from MG... does it ever get better?
i know there is no cure, but will i ever feel normal again?
There is always hope and best wishes... I'm pretty darn close to "normal" where the disease is well managed with a minimal dosage of mestinon. But I still have up & down days.

Have you been diagnosed antibody positive?

You've found yourself a pretty friendly community here that understands what you're going through... feel free to chat, rant, question. We'll help as best we can.

I recommend that you get a copy of http://youmeandmg.com/ and give it to your family or local support structure. If you're riding it out alone and nobody understands this book will give them a better insight into what you're going through. Another one for your friends that is quite a bit shorter but will hopefully give them a little understanding of how you have to cope is http://www.butyoudontlooksick.com/ca...-spoon-theory/ . One of the worst things about the disease is that you can look perfectly healthy on the outside and be falling down inside. Without experiencing it, other people cannot truly understand it.
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"Thanks for this!" says:
Gabs1307 (10-11-2011)