Quote:
Originally Posted by numb
Catra,
First of all, i am sorry to hear what you had to go through. Did you have the LSB? I wonder did your doc hit your nerve that causing the spread to your neck and other parts of your body. It seems you have the RSD everywhere. Did you ask your doc why you were having such a bad reaction?
I remember one doc who used to tell me "don't look up the internet also". Without the internet, i probably don't even know what i am dealing today.
I am impressed with your positive attitudes and truly hope you can manage your pain to a bearable level.
Good luck with your treatments.
Numb
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Yes, it was a lumbar sympathetic block. The doctor didn't know what to do about my bad reaction to the block...I don't think he has ever had anything like that happen before. He was very quick to say that the only complication that can happen from a block is infection, however before the block and even in his medical records he states that he told me about a bunch of other possible complications that there is a 1% risk of. It's not like I blame him for my bad reaction...things happen...but I know some doctors get very worried about the idea that someone might sue them. So he referred me to a neurologist and sent me to my primary care doctor and that was the last I saw of him. From there I bounced around a lot until I ended up with my current doctor. There were some really rough patches where I was nearly at wit's end, but several members on here were incedibly helpful and supportive and my boyfriend and his family have been wonderful as well. My current doctor thinks that because there was such a delay in getting any diagnostic testing done, there are a few things that could have happened. I could have ended up with chemical meningitis from the block which caused problems. The injection itself could have hit the wrong spot and caused some damage that caused the spread. The doctor performed the first block when I had an active MRSA infection and maybe the block caused it to enter my bloodstream which then caused damage throughout my body which caused the spread. All the medications the doctors were haphazardly throwing me on and off of caused a mild form of seratonin syndrome which may have caused some of the symptoms (like the hallucinations which stopped when I stopped all of my meds). I could have had a bad reactions to the medications themselves from the block. I was under so much stress from all of it that it may have caused the problems to get worse faster. But we'll never really know exactly. All that seems to be certain is that the RSD has spread (and depending on the doctor they might not agree because I saw one who said RSD does not spread and one who said RSD can only happen in a hand or foot). But I'm moving on and forward and am just thankful for all the good stuff I have in my life. Things can always be worse.