Nolefan...I too feel exactly like you. I'm not taking meds anymore --just the occasional ambien to sleep. The one thing I noticed is that I can do a little more now than I could a while back.

Can you remember back 6 months ago (say take a particular outing) write down how you felt during and after. See if you notice any improvements. Then 3 months ago. And just last month too.

I know for myself that at the beginning of the summer I had to go lay down for 20 mins to an hour on my deck just after making breakfast for the kids. It was awful. Now I'm out and about for a little bit...doing wash in the morning etc.

I May I watched my friend's puppy while they went on vacation -- it took everything out of me. Right now I have my sister's puppy and I'm really enjoying her.

Last fall and spring I went to a baseball game and lasted 20 mins and had to come home. Now I can go, don't feel well, but I get thru it.

These things are all encouraging. My husband keeps reminding me of them ... I break down and cry because I want to be 100% but 60% for now has to do.

I am always looking for other things that can be the reason for my head/neck pain...as I don't feel its so brain related since I don't have a cognitive issue. I can remember everything, no wordfinding issues, no verbal problems, etc. I just feel like crap all the time, get off balance after i've overdone it, my head hurts all the time, etc. I can't go shopping for long, but when I make the quick attempt I don't suffer the way I used to.

I know its so hard to see the positive in this crappy situation, but you are getting better...slowly -- there maybe setback days, but keep your head up (wow..can't believe I'm typing these words -- I should really take my own advice ...well this is really my husband's advice but I know he's right)

We will all get there...stay strong.

You can private message me if you need to talk and don't want to post to everyone.