I am so glad I found this talk. I also have neuropathy and progressive muscle disease along with UCDT that they first told me I had lupus then scleroderma, I have microscopic colitis for which I have been in a flare for two months, I am hypothryoid, Reflex, Raynauds, photosenstive just to name a few of my autoimmune problems. I am on my way to a teaching hospital to get a second opioion. So when I seen this forum I was like yes, nobody esle gets it. I do have to ask what you girls take for the neuropathy? I am on a pill for anti siezures called carbamazepine anyone else on this? Also do not want to take predisone. I have issues with that.
Right now, I am having new symtpoms of burning scalp it is really bothersome it feels like when you were a kid and your ponytail was pulled to tight, sort of. I am thinking it is a neuropathy thing. But cannot find a lot of info on it.
Thanks again for letting me add my two cents.
Susie