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Originally Posted by dknight
I had it when i born. Now im 41 year old. Want to find somebody who has the same thing. Im not in a wheelchiar.still can walk,drive.do thing's i like to do.
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Dkight I have the same thing and cannot holdout very long to walk anywhere.
I am at the point where I am holding on to everything I walk by cause I am scared I am going to hit the ground with every step I take. I am 39 at this time and still walking without a walker but seems like it would safer to used one then take a chance on falling and hurting myself. I have a girl friend that wants me to go on a cruise with her but it's kinda scary thought because I'm not sure about my condition will be a year from now. Feel free to email me if you like I am on facebook as rodneyln ( Rodney NeeSmith ) Georgia