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Old 10-08-2011, 06:27 PM
Westgrl Westgrl is offline
Junior Member
 
Join Date: Oct 2011
Posts: 27
10 yr Member
Westgrl Westgrl is offline
Junior Member
 
Join Date: Oct 2011
Posts: 27
10 yr Member
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Quote:
Originally Posted by FrancineAK View Post
saw neurologist for first time this week. told her i've have pain in toes, fingers, etc., usual stuff, but also in my abdominal wall. when i have this pain i can't stand up straight. she looked at me like i was speaking french. anyone else had this pain? i got sjogrens diagnosis in 1996, trigeminal neuralgia in 2007. now looks like peripheral neuropathy. anyone know about autoimmune sensory neurontisis (ganglioneuritis)?
I had pain about a year and a half ago. It was painful to walk too much, and it sometimes moved around. I went to 2 GIs, had a CT scan, upper endoscopy and they couldn't find a reason for the pain. I was finally told it was probably just colon spasm & they suggested I take Align. By then the pain had pretty much subsided. I was just diagnosed with B12 deficiency a few months ago after I asked for the test when they couldn't diagnose 2 bad loss of balance spells. I have a whole list of neurological symptoms that I am just now discovering could have been a sign of B12 deficiency. None of the Dr caught it. I have read that GI issues are a sign of B12 deficiency. I also went to a neuro for the first time & he didn't seem to know much about it.

Sorry for the long winded response, it's frustrating dealing with doctors. So, my answer would be yes, it's possible that the pain could be neurological. In my case it just kind of went away by itself in a few months but I am sure everyone is different. Many of my neuro issues come & go without warning.
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