Thread: What to expect
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Old 10-08-2011, 09:37 PM
brandonc brandonc is offline
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Join Date: Apr 2010
Location: Chicago Suburbia
Posts: 74
15 yr Member
brandonc brandonc is offline
Junior Member
 
Join Date: Apr 2010
Location: Chicago Suburbia
Posts: 74
15 yr Member
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Quote:
Originally Posted by Gabs1307 View Post
I've just been diagnosed with Myasthenia Gravis after 3 years of going back and forth to different doctors...

i am 23 years old, and seems like i'll be fighting this alone!
I've done my research, and i've read everything on MG i've been able to find, but it seems like my family and friends don't understand it.

i am scared, prednisone is HORRIBLE... and it just seems like i have no one to talk to.

HELP?

can anyone tell me what can i expect from MG... does it ever get better?
i know there is no cure, but will i ever feel normal again?
hey gabs sorry to hear tht you have MG but glad you got a Dx. ill tell you the truth that it feels like ur fighting it alone a lot. no one really gets it. ur one of the very few people around my age that has this as well. the hardest thing is trying to keep my lifestyle pace up to what i want it to be because im 21. one good thing to maybe look forward to is that the prednisone isnt so bad after awhile. i hate the fact that we have to use the word "normal" as something to strive for but my answer for that is there are some days that you feel amazing and so close to normal.
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