I cant believe there are so many people living with this condition for years. I am convinced I have a CSF leak since a craniotomy to remove a benign brain tumour in March. Neurologists agree but no-one seems to be able to actually find anything. Have been referred to an Ear Nose and Throat consultant now - is that usual? Am lying in bed today having felt really dizzy for the past 3 days. My main worry of course is contracting meningitis - at least knowing there are so many people living with this for years means there is a chance I wont get it. Does anyone know the statistics for contracting meningitis with a CSF leak?