Thanks for your response Abby. I think the fact that I've got AS which can cause a lot of fatigue leads them to believe that's the cause of my symptoms. I'm active on a forum for that but the level of fatigue I have, arm symptoms and eye symptoms aren't typical.

I'm starting to feel like a big hypochondriac myself with so many normal tests. But I'm definitely not acting or feeling normal.

My father did have a positive binding achr test. I looked up the results .59.

For whatever reason my daughter is so much better now than as a baby and a toddler. I'm very grateful for that. In fact none of her doctors can believe how much she has improved. But she is still definitely weaker than her peers and still has vague episodes.

I guess if my repeat MRI is normal I'll ask if my neuro can do further testing.

Does anyone here have there arm start to shake after talking on the phone for 15 minutes? That's one of my weird symptoms I've developed.

Thanks again for your response.