Thanks so much for the info!

My only cause for concern right now is being dx. My doctor is ordering the MRI but based on all I have read, doctors do not readily recognize this, even know about it, and even may deny it exists. My doctor is great but I am fearful if this MRI comes back normal she will just figure it's another thing to rule out. I am afraid even with an MRI they may say it is normal, or may not show up based on my positioning. I am sure based on what I have read I do some vascular compression but that is dependent on my position. Is it worth discussing with my doctor prior to make sure that my MRI is done is a way that will really look for TOS? Or do you feel that radiologists and doctors are more aware these days and there is a good standard procedure.

Lastly what kind of doctor/specialist deals with TOS? And if my MRI comes back normal but I want to pursue this, who do you see for all the physical tests to rule this in or out?