Diane,
Welcome to the forum.
Wow! So sorry about how long you've lived with this monster. I've only been dealing with it 4 years now but can certainly relate.
After reading a lot of posts I feel lucky to have a neurologist who is very understanding and knowledgeable with RSD.
She told me where it will be spreading and she was right. I guess I lucked out. How hard it will hit is still a mystery though.
Why should anyone be afraid to tell a doctor anything? Aren't they here to help?
I'm sure I can't tell you anything that you haven't heard before but I wanted to at least welcome you to the family...