Quote:
Originally Posted by Jinxicat9
You have multiple things going on that could or could not be related.
What do you mean by "even above my age group"?
Is the basilar invagination caused by injury, illness or was it present at birth?
Did you sustain a head injury?
Are you being treated for a head injury?
Are you being treated for any inflammation?
You possibly need genetic testing or your neuro should be consulting with a geneticist.
Last but not least, with respect, your use of the word "retarded" was used/termed in an
 uncompassionate and apathetic way...With consideration for all with a disabilty, please be respectful of the term. If you want to get a little understanding and empathy, you've got to learn to give a little of it yourself...Just sayin'
It perpetuates the sterotype and false stigma of having a brain injury or disorder. |
Hi i'm 19 and this has been going on for 6 years. I didn't complain of anything until i was like 13 or 14 so i dont know if the invagination was caused from. I'm pretty sure i sustained an injury as i had intense headaches, feeling of fluid rushing/draining in my head. Weird clicking noises and my eyes got droopy and i got really weak. I think we got an mri i dont know how soon after but it was 'normal' except for white matter ongoing mylenation.
but the thinking started from that where my state of consciousness 'changed' and i had depersonalization. I always descibed it as not getting enough oxygen o blood flow to my brain because i was so sedated after. but i think there was an injury to my neck and i know i had at least one concussion from lacrosse. Also i did have a head injury when i was 6 where i hit the back of my head against the side of a pool. The interesting thing is that is where i get my headaches. I had profound mental symptoms after this accident too( not when i was 6). Intense OCD for contamination. So we tried all the tests we could with the neuro root but nothing significant like a tumor. So we went the pych root and they diagnosed me with everything in the book. Thy put me on every medicine available and eventually as they were baffled gave me 23 ECT treatments. My memory was still poor before then though.
No one is going to figure it out though and i cant. After dealing with as many incompetent doctors as i have, Even from Johns Hopkins (i live in maryland) you would have realized that. So i'm just waiting for some Self taught guru to help me.