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Member
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Join Date: Aug 2006
Posts: 744
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Member
Join Date: Aug 2006
Posts: 744
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Many of us with celiac have PN because of the vitamin and mineral deficiencies we suffer with before going gluten free. After going gluten free it's still difficult for us to get the vitamins and minerals we need without supplementing. I truly believe that EVERYONE would be better off without gluten. Our bodies just can't digest todays gluten.
It's not a death sentence to be diagnosed with celiac. It may actually help immensely with PN. Once I went gluten free and started taking B12, I was able to greatly slow the progression of my PN.
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Deb
We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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